For those who do not know me, I am an Information Technology professional of English origins, in his fortieth year, living in South Australia. I suffer from what might be called, in general terms, Chronic Fatigue Syndrome, in vaguely technical terms a malfunctioning endocrine system (thyroid, adrenal and more), and, in subjective terms, a total pain in the bum.
Up at about half six, my wife already being on the go due to the call of the doggies. Before getting out of bed, I take my basal temperature. Shower, apply first medication in cream form. Wash hands, dress, take blood sugar reading. Record temperature and blood sugar reading. Read over-night emails. Take various other medications by mouth. Prepare scrambled eggs and espresso. Consume scrambled eggs and espresso. Record time of consumption of scrambled eggs and espresso.
Do any minor chores, like turning irrigations taps in vegetable garden. Brew tea. Feel knackered.
Check logs on hosting servers. Work on client or own programming projects.
Take and record blood sugar level. Brunch – tea, sprats in buckwheat pancakes. This delightful combination can be a major highlight of my day. Now probably too tired to do much more in the way of work, but struggle on, regardless.
Take and record temperature, take noontide medications. May still be working, if this is a good day.
Snack – probably cashew nuts. Time for afternoon snooze.
Summon up energy to prepare the evening meal. This is never a good time of day for me.
Prepare meal, take temperature, try to remember to take medications (important dose). Possibly a blood sugar sampling here.
Serve and consume meal. Generally too tired to do much between now and the end of the day.
End of Day
Further temperature recording, taking of medication and consumption of my good-night pickled herrings – the latter seems to help my fasting blood sugar.
For anyone who has enjoyed (or worse, taken for granted) reasonable health for most of their life, this may sound pretty grim. Whilst I got used to using a CPAP machine, my "nursing home" medication dispenser and its contents, can still be quite overwhelming; I assume that this too, in time, will become such a part of everyday routine that I will not even notice it.
Whilst I get depressed on a fairly regular basis, I know that this is just a physiological thing, even if it is rather unpleasant. I am striving to turn my depressive episodes into something creative, as I know that others do.
Not working, as such, tends to make me feel fairly worthless, but I am still productive, just at a lower level than I am used to or might like – I am still cooking meals, with the new and extra challenge of making them gluten-free, as well as interesting and nutritious. I am learning the Java programming language, and probably setting myself a bigger-than-necessary challenge in this by working on both desktop and mobile applications at the same time.
Does This Sound Like You?
Have you just found yourself in a position like mine, with a chronic and debilitating illness? Take heart – whilst some fairly radical adjustments to lifestyle may be required (or just happen), life goes on. You may not be able to engage in the activities that you used to and would like to, but there are new ones to be discovered and the Web is big help in this.
Above all, remember this: you are not alone!